Resources
The resources listed here are for everyone who wishes to increase their understanding of and ability to advocate for people on the spectrum, regardless of their relationship to the autism community
PDFs For Educators:
Behavior:
Classroom Management
Accommodations, Modifications and Adaptations
Individual Education Plans
Inclusion in Schools
SPED, Charter School and 504s
The Law
Miscellaneous
PDFs For Parents
Behavior
Classroom Management
College and Post Secondary School
Employment
Vocational Rehabilitation
Healthcare and Healthcare Transition
10 Tips for the Transition to Adult Healthcare for Ages 18-21
10 Tips to Help Children Understand Their Health for Ages 7-10
12 Tips to Prepare Children To Take Charge of Their Health for Ages 11-13
13 Tips to Guide Youth to Take Charge of Their Healthcare for Ages 14-17
Making the Move to Managing Your Own Personal Assistance Services
Transition Health Plan for Youth with Disabilities and Their Families
Transition to Adulthood
Housing and Independent Living
Accommodations, Modifications and Adaptations
IEPs
Inclusion
Sample Letters
SPED, Charter School and 504s
The Law
Miscellaneous
Parenting
Department of Developmental Disabilities and AZ Long Term Care
Social Security
Insurance
PDFs For Self-Advocates
Services
Employment
Vocational Rehabilitation
Healthcare and Healthcare Transition
10 Tips for the Transition to Adult Healthcare for Ages 18-21
13 Tips to Guide Youth to Take Charge of Their Healthcare for Ages 14-17
Making the Move to Managing Your Own Personal Assistance Services
Transition Health Plan for Youth with Disabilities and Their Families
Transition to Adulthood
Housing and Independent Living
Accommodations, Modifications and Adaptations
Department of Developmental Disabilities and AZ Long Term Care
Social Security
Insurance
Online Resources and Organizations
ASAN (Autistic Self Advocacy Network) https://autisticadvocacy.org/
This is an organization that is operated entirely by autistic people
Autism Society of Southern Arizona https://www.as-az.org/
An organization in Tucson that does the Tucson Autism Walk and has many other resources and programs
Tucson Alliance for Autism https://tucsonallianceforautism.com/
An organization in Tucson that offers support groups, resources and other programs
Autism Now https://autismnow.org/
The Autism NOW Center provides high quality resources and information in core areas across the lifespan to individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, caregivers, and professionals in the field
Autistic Women and Non-binary Network https://awnnetwork.org/
An autism organization specifically for women and non-binary individuals on the spectrum
Self Advocates Becoming Empowered (SABE) https://www.sabeusa.org/
The United State’s national self-advocacy organization for individuals with disabilities
Disability Law Handbook http://www.southwestada.org/html/publications/dlh/index.html
This is a handbook that helps you understand the American Disability Act which is civil rights law that prohibits discrimination against people with disabilities
AWN Parent Packet https://awnnetwork.org/wp-content/uploads/2015/05/Parent_Packet.pdf
This packet has great information for parents/guardians of girls who were recently diagnosed
Welcome to the Autistic Community ASAN book https://autisticadvocacy.org/book/welcome-to-the-autistic-community/
This is a book written by autistic individuals with great information for people who were recently diagnosed
How to Get a Diagnosis
Contact your insurance to see if they cover an autism evaluation (some insurance companies even have an "autism team" that will help you every step of the way)
Ask your insurance for approved providers for the evaluation
Call the providers to see who you can get in to and schedule an appointment.
Prepare:
Write down characteristics or symptoms that you can think of
For adults being evaluated: Have anyone you know write a letter of what they have observed from you (especially helpful from your parents to discuss childhood signs)
Bring in any screening tools you may have used
Bring in any scientific articles that may be relevant
Attend your appointment
Bring anything you may need to get you through a 2-3 hour appointment
Make sure you are well rested and have a good meal beforehand.
Why is getting a diagnosis important?
Having an official diagnosis helps the individual get needed accommodations at school, work and other places. It helps to have a diagnosis so that they can also get any needed services such as speech therapy, art therapy, occupational therapy, communication devices and other services. A diagnosis can help the individual have a greater understanding of themselves and their struggles and strengths, therefore empowering them.
How to Apply for Disability
Go directly through the social security administration, do not use a third party, even if it is provided by your insurance. These third party organizations often make things more difficult
Utilize the guide on the social security administration’s website here: https://www.ssa.gov/applyfordisability/
Keep in mind that almost EVERYONE is denied the first time they apply. Do not get discouraged, there is an appeal process
Part of this process is seeing a judge at court to have them determine if you will qualify or not, this is a normal part of the process
The paperwork they send you can be confusing, but you can always call to speak to someone at social security to help you understand the paperwork and ask any questions.
It is always a good idea to apply for your children BEFORE they are adults. This makes the process a lot easier.
Local Tucson Providers
Behavioral Health Providers in Tucson
Autism Evaluation Providers for Children:
Sydney A. Rice, MD
Margaret Trouard, MD
Hopebridge
Tucson Alliance for Autism
Catalina Foothills Pediatric Psychiatry
Autism Evaluation Providers for Adults
Catalina Foothills Pediatric Psychiatry (yes, they take adults)
Patricia Beldotti, PsychD
Tucson Alliance for Autism
Sara Frye, Ph.D. with Southern Arizona Neuropsychology Associates
Places for Occupational, Speech and Physical Therapy
TMC (OT, PT)
https://www.tmcaz.com/outpatient-services/pediatric-therapy/
Therapy Group of Tucson (OT, PT, ST)
Meal Time Connections (OT, PT, ST)
https://www.mealtimeconnections.com/
Integrated Therapy Services (OT)
https://integratedtherapy.care/
Milestone Pediatrics (OT, PT, ST)
Children’s Clinics (OT, PT, ST)